We’ve been around…
We still have not received the genetic and metabolic test results. We have been back in for surgery. We have a new pair of hearing aids. Um… what else… We have something that resembles the beginning of word formation.
In the order listed above; We will call again this week to see if the genetic and metabolic results are back in yet. So we have not learned anything new on the possible autism side of things. We are in a holding patter on that one till we get a bit more information.
We were back in for surgery a few weeks ago but it was unrelated to the CDH. She had something to do with a urachus. This is the link between bladder and umbilical before birth and it is suppose to go away. In this case it didn’t, if not taken care of it can increase cancer risks later in life. It manifested its self in the form of a cyst on Sabrina’s belly button. So we went in and Dr. Coln took care of things. He went in through the belly button and now her belly button looks different than it did. He told us it would, and the total lack of a visible scar is a nice plus. I have said it before and I will keep on saying; That doctor is an artist.
Our hearing aids have been upgraded to a newer lighter smaller model. Based on the results of the test a few weeks ago they have turned the level on them way down. We are still seeing multiple therapists and the new global therapist seems to be working wonders. Sabrina is putting things inside other things now, for example, Legos in a box, or stuffed animals in a box, or a paci. in a box or boxes in a box. This new skill seems to be box related. We also have something that seems to represent the beginning of words. Strange as it is, we have gotten the best response with the word concrete… don’t ask why, we don’t know. She is moving right along, not as fast as I would like, but still moving.
Doug is getting ready for year two of preschool. Three days a week rather than the two we did last year. The different classrooms are split by color and there is a little bird of that color outside each room. Last year he was a blue bird, for summer school he was a purple bird and now he is a pink bird. I am not particularly in to the masculine/feminine definitions of color, but I have not quite adjusted to hearing him say he is a “pink bird”. I want him to say it with an Austin Powers accent. “I’m a pink bird, baby. Yeah, groovy.” Err… maybe its just me.
As for us, not too much has changed. We recreated the planters in front of the house with new landscaping bricks and are trying to find a reasonably priced sliding door so we can stop freezing in the kitchen in the winter. I am in the process of switching from a management job to an engineering job. I won’t miss management at all, I would rather be elbow deep in a server. Maybe in a few years I will go the management track, right now the technology is more fun. Thats about it for now. Till next time… probably next month, but who knows.
jean said,
August 25th, 2009 at 9:25 am
“proof that I keep an eye on your notes”—anyway–miss Sabrina does things in her own time. Keep that in mind. The climbing is wild. No other word will quite fit that skill of hers. We so enjoyed your visit with us. Doug and Grandpa Jim had a ball together–he entertained the neighbors, too. Sabrina kept all of us busy keeping her out of trouble. She loved the water and the dirt and the rocks. She loved the water bottles–I swear that she heard them crinkle and then heard the beans being shaken in the empty one–all without her “ears”. I do not count her out on anything–she (as I said before) is just doing things in her own way and her own time.
Now that “words” are starting to come, watch out–she could be a bigger talker than Douglas–how is that for scary?
Talk to all of you soon. Have a good week.
Love–gma N.