Oh the places you’ll go… since the last post in March…
After 8 months of working with CID we have made no real progress. Not that CID is to blame, there is no blame, just fact. When Sabrina was in the NICU one of the lead Doctors said he had never seen a child quite like Sabrina. I had mentioned long ago that they had her on a dose of narcotic that would have knocked an adult on their butt. Sabrina was awake and watching her surroundings. Our therapist from CID has said she has never worked with a child quite like Sabrina in her 20 or so years of working with hearing impared children. We have since been to a neurologist and we have indicators that put us on the autism spectrum. I am still learning what that means exactly. We do not know where on the spectrum she operates at this point so let the testing being. Tomorrow we begin bright and early at St. Johns for an MRI, a blood draw for genetics and since she will be sedated anyway we are going to do the BAER test… I think thats the correct acronym… the sedated hearing test. This should give us a map of where her hearing is right now. And to top off this cake we are doing earmolds at the same time. She hates earmolds and if we can do them while she is out, everyone will be happier. Well more on all this later. Time to start today.
jean said,
June 29th, 2009 at 3:37 pm
I think that in all fairness, you should also mention that she is climbing, running, eating well, and has figured out how to open your child-proofed kitchen cabinets.
And–she can get into trouble VERY fast!!! She just does not want you to become complacent in your parenting skills! (how is that for theories?) Seriously, good luck in the morning. glad you can get all that stuff done at once. Call me and let me know how she does.
Love to all of you. Tell Douglas to have fun with Grandma Karen and Poppa Steve.
Love, Jean