Over 2 Months
I can’t believe I have not written an update in two months. I would say, We have been busy, but that would be repeating several other posts so lets just assume I was abducted by a traveling troop of mimes and just recently escaped. Actually, if anyone knows a traveling troop of mimes that is abducting, please let me know, I could use the break.
Lets start with Douglas, he may have asthma. He has spent most nights since September coughing while he sleeps. Turns out after trying several dozen different things, we took him to a specialist, tried his first suggestion which did not help. Since the testing with the specialist only has some minor indicators of asthma but nothing conclusive, we did not start with the inhaler. After the first attempt failed we called the doctor who started him on the inhaler twice a day and the coughing has ceased. The boy is getting sleep for the first time in months.
Sabrina has been a busy monkey. Physical Therapy, Occupational Therapy, Doctors appointments, RSV shots, CID appointments. Her hearing aids came in and quickly went back to the manufacturer. One of the devices would stop working after a very short period of time. So we spent a few more weeks with the loaners. We have continue to have problems with one of them since we got them back but with the holidays we have not been able to get them back in for maintenance. To add to that we have a torn tube on the ear-molds so we are using one of the molds from her first set. It is a bit small but better than nothing. The audiology departments voicemail says they are out till 2 January, so we may need to wait a while to get these problems fixed.
It’s frustrating. We are becoming dependant on these little pieces of silicon, metal and plastic and they seem to be letting us down. Makes me feel like we are letting Sabrina down, just a little bit.
She has changed. She smiles more, she laughs more, she is moments away from walking, two more teeth came in. She has had her bottom teeth for months now, the top two both came in together in the last week. She is eating everything… everything. Today she tried honey mustard pretzels. Later in the day I was having a few more and she was looking at me with an expression that said, “Where’s mine?!?”. She yells and squeals and hollers and giggles and to think how close we were to losing her. It’s been a little over a year since we brought her home. Gets more interesting every day. Here’s to the year ahead, lets see what’s next.