A week, plus, later…
Well we did not get the MRI information tomorrow as expected, we got it yesterday which would be over a week later. If you want to ruin your sleep for a week, get your child a brain scan and have them tell you the information will be available tomorrow and then don’t receive any information for a week or so. I called four days in a row, not counting the holiday, and we finally got the results yesterday. Sabrina’s brain structure has formed correctly… but. See there is always a but or a however. But, there does appear to be some brain damage. We are going in Monday afternoon to see the scans and have them explained to us. The general gist of things is, there is some damage that looks like the kind of damage the neurologist sometimes sees in premature babies. The cause, in this case, can only be guessed at and the extent of the effect this will have on her is also unknown and will be unknown for some time to come. What we do know is that this may be the cause of Sabrina’s communication delays. We should know more on Monday and then in a few more weeks when the metabolic and genetic test results come back. Till then its business as usual.
We have added a new therapist to our repertoire. This time a Global Developemental Therapist. So that is one Global, one Physical, one Occupational and then our teacher from CID. Speaking of CID, we did get the results from the ABR test the day of the test. For whatever the results were worth. Sabrina seems to be hearing at a low moderate level in the ranges from 800 on up. However the ranges below 800 had no response at the highest decibel level they will go with this test which is 85 db. So about as loud as a lawn mower. What does this mean… not a clue. I expected to come out of the day at least knowing more than I went in to the day with. I didn’t expect to know less than I started with. We will need to figure out what the no response portion means over time. We did bring her hearing aids to CID and they reprogrammed them with the new information we did get. The left the lower range set where it was and brought down the volume on the higher ranges. Now if she would just keep the hearing aids in we could see what kind of results we are getting now.
That should about cover things for now. She is unsafe at any speed these days, she has learned how to climb her high chair… we are all doomed.