September 25th, 2007 at 7:33 am
(CDH)
Last Wednesday was the last of the home nurse visits. No more weekly steroid shots. She was a good nurse and a nice, friendly person to invite into our home each week… even if she was coming in to deliver shots. Doug seemed to enjoy her visits, not because he got to hear his baby sisters heart beat but because he had someone else to show his toys to. He’s a little boy, what do you expect.
We saw Dr. W. when we were at the Perinatal Center last Tuesday. He was a little bit C-Section happy. Oh, if this happens it will be a c-section, oh and if that happens you can expect a c-section. Once again, we are very happy that he is not our doctor. Before Dr. W. came in we had an ultrasound done. I asked her to take a good look at the chest. Now I am no doctor, nor do I play one on theinternet , but her heart is not all the way to the right. It far to the right, in about the middle of her right chest but its not clear on the other side as we have been told. Not that it make much difference.
Lets see, we have learned that Sabrina is a big fan of peanut M&M’s. Daphne is going in for the monitoring twice a week. During that time, they need to see a certain number of accelerations of her heart rate. Well, mid afternoon seem to be nap time for her. So the monitoring sessions were taking forever. Now with the candy they are getting the accelerations they need in less than 20 minutes and then making us sit there since they need to get at least 20 minutes of monitoring.
We went and toured the NICU at Children’s last night, just to find the hospital and see waht is there just in case we end up there are at some point. We both felt rather sick after we left. Nice place… I hope I never see it again.
We are back in today for more monitoring and ultrasound work. I called the hospital library yesterday. They are pulling some information I requested on Congenital Diaphragmatic Hernia and Sensorineural Hearing Loss. On top of everything else, she may end up with hearing issues. I want to know why.
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September 16th, 2007 at 8:21 pm
(Page Updates)
Just a quick update before its time for Douglas’ bedtime snack. I was a bit behind in the calendar updates, but that is now fixed. The site was down for a while, that is now fixed. I’ve said it before, while hosting your own webpages on your own webserver is a novel idea… it’s a royal pain. If it goes down you have no one to blame but yourself, particularly when you reboot after a patch and forget to restart your dynamic IP updates back up. I’ve got to take some time and set that to run at startup… but that is for another day. Now it is time to give the boy his snack so we can move on to story time.
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September 11th, 2007 at 12:05 am
(CDH)
We are getting up in a few hours for another round with the pediatric cardiologist. We like this doctor. We have received some of our best information from him. We had a few appointments last week. One that almost had me liking our perinatologist… almost. He finally had a meeting with the surgeon, the neonatologist and a few others and we wonder if one of them may have confronted him on our lack of information. Several times other people have told us things that we then told them that no one has told us before. Anyway, the perinatologist was actually talking to us, I was feeling that perhaps I had misjudged him. Then his pager went off… He says this is the second time the pager went off and he forgot to respond the previous time. He asked us to wait, right in the middle of talking to us about the baby. He walked out, disappeared for five minutes. During this time I determine I have not misjudged him and I am comfortable with my bad opinion of 50% of the doctors in theperinatology department. I say 50% because we met the new doctor who just joined them and he seemed like he was the complete opposite of our doctor.
We spent part of Friday in the Women’s Eval unit at the hospital. Daphne went in for our now bi-weekly monitoring to keep an eye on the baby for any distress. The sensor determined she was having contractions and the moved her to the unit to continue monitoring to make sure our little girl wasn ‘t trying to follow her brother into the world early. It was a disturbing afternoon/evening. The midwife determined that this was just early contractions and nothing to worry about, just to keep an eye on them. The contractions have reoccured the last few days around mid afternoon but they are short and mild and apparently nothing to worry about yet. We received test results from a test that determined the baby should not be showing up within the next two weeks. They claim this test is 99% accurate… we will see.
Did I mention she has a name? Sabrina Danielle. I like it.
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