November 25th, 2009 at 11:26 pm
(Autism, Day to Day, Sabrina)
Good grief, what has happened since August 23. We have gone from basic pre-word sounds to pre-words. We can recognize; more, cookie, cracker, milk, da, ma, up and a handful of others. Most importantly she has mastered “ya” as if she were born a Minnesota baby rather than Missouri. Her Grandparents must be proud. She gets so excited and does a happy dance when we understand what she is saying. Its almost as if she is wondering why it took us so long to figure out what she wants.
Therapy continues, we have a Hearing, a Global, an Occupational and now a set of Behavioral Analysis therapists. Two more visits and I will have the complete set. Lets see, we learned nothing at all from the neurologist and we are on the waiting list to get into the Knight of Columbus Development Center at Cardinal Glennon Childrens Hospital for an autism evaluation. We filled out the paperwork a few weeks ago and it can take months to get in, so we wait. We are developing some basic appropriate play, perhaps not quite age appropriate but its a start. Though if pounding on her brother was considered age appropriate we would be all caught up. She loves him so much and wants to be tackling him 24/7. Some days I think he is the center of her world… if only he would accept the adoration she would be his forever… or at least until she discovers boy bands. Instead… well, there is quite a bit of screaming and pouting.
That’s a good place to be, I need to hand the computer over for some quality time with the bill pay website. Off I go.
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June 30th, 2009 at 9:57 am
(Autism, Hearing, Sabrina)
The MRI is done, the blood draw is done and they are doing the hearing test right now plus making the ear molds. That and I am blogging from a Nintendo DSi. This handheld rocks, just don’t buy it for the camera… its pretty bad. Anyway, we are just waiting for the test to end so we can take her home. We should get the hearing results today, the MRI tomorrow and the genetics in four weeks. More later…
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June 29th, 2009 at 9:27 am
(Autism, Hearing, Sabrina)
After 8 months of working with CID we have made no real progress. Not that CID is to blame, there is no blame, just fact. When Sabrina was in the NICU one of the lead Doctors said he had never seen a child quite like Sabrina. I had mentioned long ago that they had her on a dose of narcotic that would have knocked an adult on their butt. Sabrina was awake and watching her surroundings. Our therapist from CID has said she has never worked with a child quite like Sabrina in her 20 or so years of working with hearing impared children. We have since been to a neurologist and we have indicators that put us on the autism spectrum. I am still learning what that means exactly. We do not know where on the spectrum she operates at this point so let the testing being. Tomorrow we begin bright and early at St. Johns for an MRI, a blood draw for genetics and since she will be sedated anyway we are going to do the BAER test… I think thats the correct acronym… the sedated hearing test. This should give us a map of where her hearing is right now. And to top off this cake we are doing earmolds at the same time. She hates earmolds and if we can do them while she is out, everyone will be happier. Well more on all this later. Time to start today.
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